Applications for archival data must follow the defined application process. Data will be coded; thus, it is possible that some specific information may not be available for certain age groups. For example, we may not release specific age, ethnicity and city of residence for individuals over the age of 89, as it could be possible in some cases to uncover a participant’s identity with this information. For a description of the information that is available, click here.
Institutional Review Board Instructions
In order for an IRB to consider a project exempt from review, data collection cannot be ongoing. Data collection for the Wisconsin ADRC’s Clinical Core is ongoing; however, if an investigator indicates that only data collected during a specified and past period will be requested, the project may still be categorized as exempt. See the Code of Federal Regulations, Part 46 for more details. Non-exempt status is determined by an IRB, not by the investigator.