Join Drs. Sanjay Asthana, Carey Gleason, Cindy Carlsson, and Sterling Johnson for a ribbon-cutting ceremony and light refreshments as we celebrate the opening of the Wisconsin Alzheimer’s Disease Research Center's Community Data Collection Site at the UW South Madison Partnership (UWSMP) office.
Free and open to the public.
For more information, please call 608-265-4790.
About the Community Data Collection Project
The Community Data Collection project at the UW South Madison Partnership office is a groundbreaking initiative aimed at bridging the gap between research and the community. It was established with the vision of bringing research outside the traditional hospital and academic settings, making it more accessible and inclusive to participants historically underrepresented in clinical research.
The primary goal of this project is to break down stereotypes and misconceptions associated with research by directly engaging with community members. By establishing a physical presence in the Partnership office, the project aims to create a welcoming and safe environment for participants who may find research intimidating.
The Partnership office will be utilized by both the community members and researchers. For the community, it offers a one-stop-shop experience where they can easily participate in research studies without many of the common barriers and challenges. Instead of traveling to a hospital, they can conveniently engage with researchers at the Partnership office. Dedicated African American’s Fighting Alzheimer’s in Midlife (AA-FAIM) staff including coordinators and a nurse practitioner (NP) will be present on-site to provide educational classes on Alzheimer's disease, conduct screenings, and offer support to the community.
By shifting research activities to the Partnership office, the project places the needs and comfort of the community first. It creates a safe space where participants can engage in ways that honor their contribution and acknowledge that they are a person and not merely a data point. The project follows the principle of giving before receiving, ensuring that the community benefits from the knowledge and support provided.
Overall, the Community Data Collection project at the UW South Madison Partnership office is a transformative initiative that empowers the community, facilitates research participation, and seeks to improve the health and well-being of individuals historically left out of research. As the project continues to grow, it holds the promise of strengthening the bond between researchers and the community they serve.