New studies start frequently at the Wisconsin ADRC, and we're looking for men and women volunteers. In order to match interested persons with future studies, the Wisconsin ADRC has created a research database — the Wisconsin ADRC Research Recruitment Registry — to hold the names and eligibility information of potential volunteers. When new studies become available, we will use the Research Recruitment Registry to identify persons who may qualify for the new opportunity.
As the future holds limitless possibilities for clinical trial developments, anyone who is interested in contributing to the advancement of memory research may join the Wisconsin ADRC Research Recruitment Registry. You do not have to be experiencing memory problems or have a memory diagnosis to join. Joining the Research Recruitment Registry does not commit you to participate in future studies. If you are contacted about a new study, you may decline to participate in that study and still remain in the registry to receive information about other future studies.
To join the registry, fill out the enrollment form below or call one of the study contacts at the bottom of this webpage. Wisconsin ADRC staff may contact you approximately once annually to verify that your medical history and medication information remain up to date.
Frequently Asked Questions about the Research Recruitment Registry
What is the purpose of the Research Recruitment Registry?
The research goals of the Wisconsin ADRC are to promote preclinical diagnosis of Alzheimer’s disease and identification of early intervention and prevention strategies. To help us accomplish this goal, we developed the Research Recruitment Registry to provide researchers with a group of people willing to participate in Alzheimer’s disease research. The registry helps us match participants interested in memory research with appropriate studies.
Who can join the registry?
Anyone over the age of 18 who is interested in contributing to the advancement of memory research may join the registry. You do not have to be experiencing memory problems to join.
What does my participation in the registry involve?
The registry is a group of people who have expressed an interest in being kept informed of studies related to memory for which they or a loved one might be eligible. The registry will allow us to keep in contact with people interested in research and contact them regarding educational events and other Wisconsin ADRC-sponsored events. If you participate in the registry, you may be contacted in the future about enrollment in a research study. Being in the registry does not require you to participate in future studies. If the Wisconsin ADRC contacts you about a new study, you may decline to participate in that study and still remain in the registry to receive information about future studies.
Are there risks involved in being in the registry?
The main risk is for a breach of confidentiality regarding the diagnosis of a cognitive condition (dementia or MCI) or risk for the development of Alzheimer's disease. While a low risk, a breach in confidentiality could cause personal stress and/or affect a subject’s insurability. To protect your confidentiality, all participant information will be kept in locked drawers, file cabinets or secure computer files; only authorized research personnel are allowed access.
Once I join the registry, what kinds of research studies might be offered to me?
There are many types of studies that may be offered to you. Our primary areas of interest include the early diagnosis and effective treatment of memory disorders, as well as the prevention of these disorders. We also examine changes that occur over time in healthy memory. Some studies involve only one visit to the research center, and others involve multiple visits over a period of time. Participation in a study may involve questionnaires or memory testing, and may involve biomarker procedures, such as a blood draw or MRI scan.
What if I change my mind?
Participation in the registry is completely voluntary. You are free to withdraw from the registry at any time and for any reason. Withdrawal from the registry will not affect your health care at UW Health or your ability to participate in future research studies. If you ever change your mind about being in the registry, all you need to do is write to or call the Wisconsin ADRC or one of the study contacts listed below.